Tag Archives: Vision Impaired

Corneal Transplant for Keratoconus

Standard

download

Finally for the first time in over 2 years I am pain free from scleritis (eye pain).  That is amazing and down to the Cyclophosphamide I started taking about 4 weeks ago.  The first week I felt terrible, really nauseas then I came good and felt great for a couple of weeks.  I was thinking this is brilliant, then in week 4 I am getting light headed, dizziness and fatigue.  It’s worth it not to have that awful horrendous eye pain!

Assuming my bloods are ok when I go back to the rheumatologist in 3 weeks I can move on and start thinking about my corneal transplants and where I need to be to be able to have my surgery.  I have severe corneal neovascularisation, the vessels I have are big and deep and there are plenty of them.  They are not ghost vessels either, they are still active and blood filled.  I can’t have my surgery whilst they are active as the graft would reject.  In my doctors words “it would be a disaster”.  One positive thing, in my eye check-up last week my doctor felt like there were less vessels in the right eye and maybe the Cyclophosphamide has got rid of some already.  I hope so that would be amazing.

I had two wishes, 1 was to get rid of the pain – check! and 2 was to be able to see properly.  So I am halfway there!  Point 2 is going to be harder to achieve, every time I see my eye doctor I’m like can I get my graft yet and always the answer is no.  Hopefully one day soon I will get a yes.  I am so desperate to improve my vision, I really struggle in particular at work reading my computer screen.  Some days are really awful and I can hardly see a thing.

I know having a graft doesn’t automatically guarantee good vision but it’s surely got to be better than looking through a forest of blood vessels, even if I have to wear a lens on it I will be ecstatic.

Keeping my fingers crossed that next time I get a check up even more vessels have melted away.