A kerataconus Update

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Topo Left Eye 2008

I have been on Cyclophosphamide now for about 3 months and it was going really well.  Well about 3 weeks ago I had a scleritis flare which was really painful and gave me a week long migraine because all of the eye socket was also inflamed.  I have had 2 orbital floor steroid injections over the last 3 weeks and now i’m sporting a lovely bruise under my right eye.

Anyway I digress, back to kerataconus news.  My doctor said that I desperately need grafts in both eyes but particularly in the left and we have been working to get the left one as healthy as possible before surgery, i.e. getting rid of the scleritis and corneal neovascularisation as much as possible.  If I have the graft with the blood vessels growing into it the transplant will most likely reject and be a disaster (my doctors words).

I saw him on Wednesday and he is now saying that the vision in that eye is so bad due to the blood vessels we may as well do the surgery soon as we have nothing to lose if it fails.  I have no useful vision out of that eye now even with a lens in so I tend to agree with him.  It will make the surgery a bit more complex as he will have to cauterise all of the blood vessels first.  I don’t just have a few blood vessels I have loads and they are really deep and growing into the middle of the cornea.

I am seeing him again in 2 weeks for a review of the scleritis flare so I will try and pin him down to a timescale of when my surgery is likely to be then. They are thinking about increasing my chemo to try and stop the break through flares which may not be fun as I might get increased side effects.  I am prepared to do whatever I need to fix my eyes though.

The pic is a corneal topo of my eye taken probably about 8 years ago, its the only topo I have.  I reckon my eye has changed heaps since then I would love to see an updated one!

Well that’s it for now, I have surgery in my not too distant future which I am very excited about, It will be nice to have an eye with some vision in it as currently I am seeing through a white haze.

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