The Battle Continues!

Standard

alert-medicines-methotrexate-methoblastin-child-locks-150310-2

Last week my doctor changed me over from daily Azathioprine to weekly Methotrexate.  I couldn’t stand the side effects any longer and it wasn’t really doing much to help my eyes.

I am on week 2 of the Methotrexate, I spend 3 days crook as a dog (the day I take it and 2 days after), horrible but I guess it’s better than the 7 days I felt ill on the Aza.  It’s unfortunate I take it on Fridays because I spend all weekend feeling awful then I’m back to normal again for work on Monday …. Hmmmm that was a bit of bad planning!

I’m starting to wonder if my eyes will ever improve, it always seems to be one step forward and then two back.  It will be 2 years in November that I have been battling the scleritis, can’t believe how quickly time flies.  But it’s not good when you think about it, nearly 2 years and they are no closer to finding out the root cause and really my eyes haven’t improved that much either. I have days where they are so painful I can hardly stand it.

My doctor always calls me a medical mystery and his VIP patient as I’m there every fortnight for my treatment.  I guess when you have something relatively rare happening in your body that they can’t solve you do become a bit of a medical mystery.  I have seen a rheumatologist, and probably about 6 different eye specialists and I’m still suffering with vision loss and chronic daily pain.  The next step is the immunologist; my eye doctor has written a referral so I will see what they have to say when I get my appointment through.

I guess I just need to keep going, keep my mental health well and hope that one day I get some definite answers and a solution to the problem.  I think the key for me is staying well mentally, if i’m good in that department I can cope fairly well with the pain and the daily struggle to see. I’m really working hard not to fall down that slippery slope to depression, so far so good!

 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s