Chronic Scleritis is Miserable!



Scleritis has become a huge part of my life over the last 7 months; it has affected me on a daily basis, made me miserable and depressed, given me chronic pain and made me cry.  So what is scleritis?

Scleritis facts
* Scleritis is a chronic and painful inflammation of the white of the eye.
* It is a serious eye disease which is often associated with underlying autoimmune disorders.
* Prompt diagnosis and treatment is essential in preventing permanent vision loss

I have tested positive for the HLA-B27 gene, this means that I am predisposed to getting auto-immune diseases.  With bilateral (both eyes) scleritis there is generally an underlying cause.  The fact that I have had it for so long without resolution also indicates that there is something else going on.

It makes me doubt my diagnosis of fibromyalgia too because my widespread body pain has practically gone since I started taking Methotrexate.  I think next time I see my rheumatologist I am going to push him for a diagnosis. I really need to know what is going on.  It’s a shame that the Metho has fixed my body but not my eyes.

I have noticed over the last couple of days that my left eye is hazy, almost like I am looking through a fog.  This could be a complication of the scleritis but I am a bit concerned it is a result of the Avastin injection that I had a few weeks ago.  I googled side effects and cataract formation is one of them.  Great that’s all I need!  I’m seeing my eye doctor next week so will get it checked out then.

Work is a real struggle at the moment, it’s hard to get a productive days work done when you are battling pain and foggy eyes.  The only thing that is keeping me going at the moment is painkillers (keeping me sane too!).  I have been taking Panadeine Forte and saving the Endone for when it gets really tough and I can’t take it anymore.  The feeling of relief when those painkillers kick in is amazing.

I am going away for the weekend so I am looking forward to having some down time to chill out and relax.  My eyes will probably still be bad so I will still have the pain but I am hoping that being in a different environment doing something fun will take my mind off it and help me get through the weekend. At the moment I am taking one day at a time and just trying to get through as best I can. That’s all I can do.

Like the picture says “keep calm and smile on”.


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